Видео

@@kara7197 Hi Kara, it’s kind of you to check in on us, thank you. You are quite right, I’m not doing good, this last few months I’ve seen quite significant decline in my mobility. It never seems to end. I hope you’re doing better than me. Lovely to hear from you. Take care in that heat. 🙏

Hello there, just taking every day one step at a time, sometimes hour by hour. Thank you so much for asking, I hope you are doing well. 🙏

@@TheDetoxCureGuide No, I haven’t.

@@NeilBradleyMS I had CFS and multiple MS like symptoms. I used to watch your videos many years ago. I am now recovered though detoxification. In fact I am just putting a video together on the link of environmental pollutants and MS. I saw you have tried the conventional treatments without benefits. I also put together a guide on detoxifying these pollutants. Actually there are many studies showing people recovering from MS by removing these pollutants.

CONCLUSION Findings demonstrated that higher levels of As and Cd were associated with MS, however, no significant differences were found in terms of Hg and Pb. TOXIC HEAVY METAL CONCENTRATIONS IN MULTIPLE SCLEROSIS PATIENTS: A SYSTEMATIC REVIEW AND META-ANALYSIS

A health questionnaire found that MS subjects with amalgams had significantly more (33.7%) exacerbations during the past 12 months compared to the MS volunteers with amalgam removal. The paper also examines epidemiological correlations between dental caries and MS; as well as how mercury could be causing the pathological and physiological changes found in multiple sclerosis

@@jennifer4079 Hello Jennifer, I’m really pleased to hear diazepam is helping you, and yes it is such a shame people to abuse it because then the people that really need it suffer. Super happy you feel better. 🙏

@@debbiefischer945 thank you so much 🙏💛

Ahh bless you, you’re so kind. 🙏

Hello there, and thank you for your kind words. Yes, I’m am subbed to her channel, have been since she set it up, her name evades me now, but her content is very good.

Thank you so much for thinking of me. I think I’m finally in a place I’ve got them relatively under control. For me I find magnesium & calcium works very well.👍

@@NeilBradleyMS I’m so happy about that! ❤️

@@2youngbon2 Thank you, I do hope that you're also managing ok. 🙏

@@NeilBradleyMS ok so far. Do you now that song “The Sun Will Come Out Tomorrow?” Love that. It keeps going through my head.

@@2youngbon2 Yes, I do know that one, I like it too. Chronic illness certainly isn’t easy. Good to hear you are ok 👌

@@horse_chick hi there, and thanks for your message. The chest pain I experience is more muscular than like a squeezing pain. I do experience the squeezing pain in my legs, this is classic nerve pain and it’s very uncomfortable. In multiple sclerosis there is a condition called the MS hug which feels like the chest area is being hugged, but it is like a tightening of the skin, quite hard to explain really. all the best - Neil.

Hi Dexter, First of all, thank you very much for watching the video and sending me a message. Unbelievable!! Doctors never cease to amaze me, 400mg of Pregabalin (Lyrica) I would say is a very high dose. To expect you to go from that level to zero is nothing more than irresponsible. A Dr really should know better. It even says on the label and instructions of these type of drugs, never just stop them, always speak to your Dr first. I’m so sorry you’ve had to go through this terrible ordeal. I’m so terribly sorry you are feeling like this, but after reading your message a couple of times I really can understand why. You have, and still are really going through the mill. I REALLY hope today is the day you get a Doctor that gives you their full attention, and HELPS you. I understand your constant 24 7 pain, I really do, because it’s the same for me. For me, you can also add into the mix stiff muscles, weakness, significant disability. The latest thing for me is unable to take a single step without holding on or having some aid to help me. Last year I was able to at least take a couple of steps unaided. I know this isn’t about me, but the reason I’m telling you is to re-iterate you’re not alone. My life is basically these four walls now, pretty much. I do go out but it’s only to do necessary chores. I am however incredibly lucky to have my wife who supports me in everything. She really is a God sent Angel. Please, no apologies are needed, I completely understand you’re struggling to write with having tremors. I’m really sorry you’re feeling like this, I wish there was something I could do to help. I really do hope you see this message, I’ve tried to respond as soon as I was able. I’m hoping and praying the Dr today has listened to you and taken you seriously. If not, perhaps you should consider talking to somebody that will take you seriously. My wife has just suggested you put into Google search “depressed need help”, I just did, and it comes up with lots of help, including the samaritans who will speak to you over the telephone. Please give this some thought. If you are able, please come back to me and let me know how you got on today. Sometimes all we need to know is there is somebody out there who cares. We care!! Neil & Teresa. 🙏💛

Ahh thank you for your kind words. Yes there is a very slight difference between Ocrevus and Rituximab, but I think it’s only very minimal. I’m receiving Rituximab, in fact I’ve only just recently had an infusion a couple of weeks ago which should last about a year or just over. I hope you’re managing your symptoms ok. Take care - Neil. 🙏

Blessings to you, thank you for sharing your story and your terrible ordeal with Covid. I’m so happy to hear that you and your husband have recovered now. I would say for myself it took me approximately a full year to completely recover. The spasms were absolutely horrendous and debilitating, and of course then there was the muscle aches. My goodness I never want to catch Covid ever again, absolutely horrendous and life changing. Having said that, Covid has in fact left me with significantly more weakness particularly in my left leg. I can no longer lift my leg up the stairs where as before Covid I could, it’s giving me a lot of problems, and it’s very upsetting. Sending good wishes and prayers to you also 💛🙏

Hello there, thank you for your comment. I’m really sorry to hear that you’re suffering these horrible symptoms, they are very real aren’t they. Convincing the doctors is a challenge, that is for sure. There are a lot of very good doctors out there such as Aaron Boster, I recommend you search for his RUclips channel. Unfortunately, there are also a lot of bad ones. My advice would be to start a journal go as far back as you can remember and list symptoms. Also list current symptoms, and of course any new symptoms. Neurological conditions such as multiple sclerosis are very hard to diagnose and history quite often plays a big part in that diagnosis. you could also put how these symptoms are making you feel. Remember to date and time as much as possible. How do I get through mentally? Well, it is very difficult to be quite honest. Every day is a challenge, quite often every hour. My pain, discomfort and mobility is continually getting worse and I just have to sit back and watch it whilst there’s nothing left medical that can be done. This time of year is particularly difficult, watching people go on their holidays and enjoy themselves, whilst I’m just stuck at home and can’t do any of those things now because it’s a struggle simply walking from the kitchen to the front room. I won’t lie I have some very dark days, but then there is the odd good day. I really hope you get to the bottom of your medical problems, and get the answers you are seeking. All the best - Neil

Hey there, I don’t wish that chest pain on anybody even to this day it’s still there in background for me. I do have bad days quite regularly also still. Oh yes, I know that feeling of self diagnosis before the doctors, I also did that. Super happy to hear that finally, you are someway to a diagnosis however it saddens me to hear that you are struggling so much with symptoms. Hang in there.

@NeilBradleyMS I thank you much my friend, I hope that you are still doing well to this day (i know how old this video was). Fortunately for us there is treatment options that those before us missed out on. And here's hoping to an actual cure in our lifetime! Everyone around me is struggling with my diagnosis. For me it's peaceful. Liberating in a way. As for years I've been telling people i had some kind of cyclical disease that no one else has. Turned out it was just classical pre presentation ms working it's course. The hardest thing is not the pain or the diagnosis for me, it's getting to that point where someone listens enough to us that they actually consider it. For me it took going numb down the right side of my body. But I am fortunate that i definitely either have remitting ms or secondary progressive (those things are still being worked out). And that my symptoms have either gone away or subsided/improved. It's much more sad to recognize how many others out there don't get any relief at all. . Best to you and yours my friend, thank you for the reply.

Thank you for your kind words.🙏

Hey there, good to hear from you. The chest pain you experience sounds almost exactly what I have, even to this very day. It never goes away, ever. Even as I type this message it’s there in background. Your description fits perfectly. Yes unfortunately once we’ve got the MS “label” most things are put down as that, even when it can quite easily something else. Gosh, you really have been dealing with this horrible illness for a long time, I’m sorry to hear this. For me, I’ve been robbed of everything, still my quality of life dwindles on almost a daily basis. I’m very tired of it all. Yes, I think finding a new specialist sounds like a good idea. Great to hear from you.

I know those feelings well, I’m sorry to say. I still get them to this day.

I’m not familiar with that area of the brain, to be honest I’m not familiar with brain geography at all. You might have your Google That one. ☺️

Hello there, thanks for the message. Unfortunately I am not doing better mobility wise and it has continued to worsen to the point it’s getting very scary now. Rituximab is only a preventative treatment, it suppresses your immune system to (in theory) stop it attacking good tissue and causing damage. I do believe without having Rituximab I would in fact be worse. I hope all is well with yourself, and I hope this information helps you in some way. 🙏

Not so bad thank you Patrick, Day by day, hour by hour sometimes, have to keep going don’t you. Hope you are doing okay also. 🙏

You’re so welcome Patrick, I hope you found the video useful. 🙏👍

This video is a number of years old now, but I believe I was going for a steroid infusion. So this would be 3 consecutive days of intravenous methylprednisolone. This is a powerful anti-inflammatory drug which is used to help reduce the impact of relapses. I hope that helps.

Thanks Neil- Stay strong you and Tracey ❤

Thanks, and you,too 🙏

My understanding is the JC Virus resides in a significant amount of the human population, but it lies dormant as the immune system keeps it suppressed. I'm not 100% sure of my facts, but I do know the JC Virus has to been monitored if you're receiving a particular type of treatment for MS, I can't remember which treatment it is now, Tysabri I think.

@@NeilBradleyMSok. It’s been 2 years, I have received any treatment. I had bulge disc issue on l5-s1 mri scan says… there is a stiffness, earlier it was causing issue like pain and flexibility problem. Now it’s fine but still there is 5% remaining, back exercise is helping me a lot.

@@NeilBradleyMS Are you immunocompromised ?

Yes I’m immuno suppressed with rituximab.

@@NeilBradleyMS Ok, but why? Do you have any other infection apart from JCV?

Hello there, I'd be lying if I said things were good. At the moment I'm really struggling with my left leg which does not want to move. I can barely lift my foot off the ground a couple of inches, this is making mobility extremely difficult. Climbing the stairs, getting up the step to the back door, even climbing on my mobility scooter is a challenge. I apolagise, I feel all I do is moan but then again when your life is a constant struggle hour by hour, it's difficult not to. I hope all is well with yourself, or at least reasonable.

@@NeilBradleyMSSorry to hear about your problem. Have you tried any physical therapy for pain? I think I got this virus 2 years back, and few months back it got detected. I do had stiffness with lower back specially heap area and lower spine. Regular exercise is helping me to mobilise but still have stiffness.

Hey there, we're not too bad thanks, but life is throwing quite a bit at us at the moment though. I've got to spend a day in hospital for treatment, my elderly Mum is having an Operation in July, and Teresa is also having a small procedure shortly. It never rains, but it pours. I hope all is well with yourself, or at least not too bad. 💛🙏

@@NeilBradleyMS Yikes, I guess so! Prayers for you, Mom and Tree are being sent your way for much improved health after this rain storm🙏🏻🫶 All here is the same with dismissive doctors. All I know to date is that I have "a rare neurological disorder" and "It's never going away" I say..."No kidding Einstein! Isn't it obvious?"🤦‍♀️. I gave up on the doctors in this state. But I was prescribed a brand new Nitro Sprint rollator Walker🥰❣️. Now I can at least get some walking time in without fear of falling😃 It's so nice to hear back from you, thankyou😘. Stay well, enjoy your garden time and your beautiful little getaway shed and stay in touch; because we love and care😘😘😘

@EMS-hp9tf That super good new to hear with regard to your new rollator which is allowing you some much deserved freedom. Fantastic!! Yes, now starting to spend most afternoons in the Summer house, 🏡 now that the weather is warming up a bit. I’ve about gave up with the Dr’s also, I don’t believe they know what’s wrong. I no longer agree with their diagnosis, what I do know is I’ve got myelitis for sure, which is inflammation of the spinal cord. We just have to keep plodding on don’t we. Xxx💛💛

Hello there, how lovely to receive such a nice message from you, thank you. Firstly, I would just like to say how terribly sorry I am to hear that you are in so much pain, know that I do understand what you're going through. I am in 24 / 7 severe pain and discomfort, not only that but also significant muscle weakness and disability which is just continually getting worse. You are correct about the Lyrica causing the bladder urgency, however when this was happening to me I'm pretty sure I mentioned it to my Dr, and was told it was the MS. You see, once you've got that "MS" label, I feel they just put everything down to MS when it is not always the case. These type of drugs (nerve pain killers) over the years I've learned they play merry hell with my body and they really do not suit me at all. It isn't ideal for me, but I stick to Opioids for pain relieve now, and they often don't really work very well either. Ahh, the muscle stiffness you are experiencing in your leg and hip sounds just horrible. Again, I do understand. Similarly to you, it is also my left leg which is giving me the most problems. This morning I went to get out of bed, and both my legs were that stiff, I could not bend them at the knee. So I was sitting on the side of the bed with my legs straight out, what I wanted to do was put my feet on the floor, but as I say my legs would not bed at the knee. I've no doubt you're possibly having similar problems and will agree how massively distressing this is. I'm so happy to hear that my video resonated with you, this particular video is a few years old now but I'm very happy it's still helping people such as yourself. Take care, and if you have anymore question please feel free to pop them in the comments. If I see them, I will always come back to you. - Neil. 🙏

There is no cure for Multiple Sclerosis you silly person, so stop spreading false hope to people for monitory gain.

Hello Judy, oh my gosh.. I'm so terribly sorry to hear you are suffering in this horrible way. Know that I do understand though. Like yourself, I was so incredibly active, fit and health. I really looked after my body, for what good it did me. I feel I've been stripped of EVERYTHING, now it takes me forever to just get to the kitchen which is about 15 feet away. I'm really sorry to hear you've not seen your children for such a long time, is this because they are having trouble dealing with your illness perhaps. 💛 Yes, nerve pain is VERY debilitating, even now as I type this message to you, both of my legs are screaming at me with nerve pain, and I feel the tight squeezing sensation which never goes away and only varies in intensity, do you know that feeling? Having absolutely everything you enjoy in life taken away is very tough on your mental health. I'm actually going in for Rituximab infusion on June 19th, this is a preventative treatment in the hope it slows down or stops the attacks. I tolerate it quite well. I've tried a lot of different drugs to try and help, I've discovered that quite a lot of them have a detrimental effect in as much they weaken me further, so I stop taking them. Have you found this at all? I hope this message finds you feeling a little bit better than when you wrote to me a few days ago. Take care - Neil.

There is no cure for Multiple Sclerosis you silly person, so stop spreading false hope to people for monitory gain.

They are seriously horrible aren’t they. It’s just gone 4am as I’m writing this message and I’m having to get up, because my leg won’t stop spasming. Drives me to destruction.

Hey there, I’m so pleased my videos are helping you. There’s quite a few to get through, although I haven’t done any for some quite now as I just don’t feel like it, or have the motivation anymore. Yes, yours symptoms sounds exactly like mine, so I know what your going through. I’ve been dealing with this since 2007.

Me too since I wa s 25 now 60

Definitely not good, that feeling that something is wrong but nothing shows up. I’m significantly going downhill at the moment, I can’t do things I was able to do a couple of weeks ago. I’m just standing by whilst my body just deteriorates, and there’s not a dam thing I can do about it. 😢

Did you see your MRI SCANS YOURSELF OR GET A 2ND OPINION ?

Totally understand about the leg spasms. Something I have found that I feel definitely helps me, it’s a supplement called Calcium and Magnesium. My spasmed were off the scale.

We absolutely love our summer house, it has to be one of the best things we have ever done to our property. 🙏

Hey there, lovely to hear from you again and welcome back. Oh dear, by the sound of it your health hasn’t been good. I’m really sorry to hear this. It’s the same for me, mobility wise, I’m the worse I’ve ever been, and it just continues on the downward slope unfortunately for me. Take care.

Ah bless you, I’m so terribly sorry to hear that you are suffering like this. Do you have an underlying condition which you are being treated for with Pregabalin, or do you think this drug is the cause of some of your symptoms. Do take care. 🙏

Hey there, I’m really sorry to hear what you’re struggling with at the moment. It’s seriously not easy. As for disease modifying therapies, yes I do feel they are worth taking, especially the more modern ones such as Ocrevus. I do believe they help in staving off attacks, and that’s what you need to slow down this condition. I hope my opinion helps. Take care. 🙏 Ps, try taking calcium and magnesium for the leg spasms, this supplement has helped me tremendously.

Hello Jean, thank you for letting me know this tremendous news 😃. I’m so thrilled for you, it must be amazing for you to have no more restless legs. Since making this video I actually stopped taking the magnesium for a while and my leg spasms returned somewhat violently. I’ve recently started taking the magnesium again, and I’ve not had a nightly leg spasm in what must be months now. I’m so happy for you, thank you so much for letting me know. 💛🙏

Hello there, I’ve had Rituximab quite a number of times now, and honestly I have not experienced any hair loss whatsoever so ever. I’ve never noticed anything untoward such as hair coming out in the shower, or extra hair in my comb. I can say with confidence hair loss has definitely NOT been a side effect of Rituximab for me. I hope that helps somewhat to settle your mind. Blessings to to also my friend. 🙏💛

@@NeilBradleyMS thank you so much i have tears in my eyes...cant thank you enough for such quick response to such old video..may god bless you with good health and every happiness you ever wish for ameen

Ah bless you my friend 🙏 I can see that you are extremely worried about this therapy. If there is anything else I can help you with please don’t hesitate to ask. Take care.

Thank you, yes tried it. Nerve pain killer drugs generally work by turning down the central nervous system. Consequently this just makes my muscles weaker than they already are. Really appreciate your thoughts though. It’s a double edged sword for me. Hope you’re keeping as well as can be.